Ok, so starting at the end of the second bullet:
* I can return to work after the PET/CT and EKG. I hope. They don't have to put me out, so that is good. Then Thursday is the Bone Marrow Biopsy. I have to be put out for this, so its another day off. Also, I can't exercise for 2 days before the PET scan. It uses sugar build up to trace where tumors might be, and exercise builds up sugar in places that could be deceiving. This is not a really big deal, I am not an exercise nut, but I have been trying to go on short walks to work up to the 5K. And with no exercise Sunday and Monday, then being put put Monday and Thursday, I think my week just may be walk-free. Bummer. Then there is just one week till the 5K.
* Speaking of the 5K: my doctor wanted to start my chemo on the 8th of May. For just a second I thought that would be fine. Then it clicked. That is the day before the race, and I would most likely be sick still that day. I don't want that. I want to be in the race! So I told him I needed to reschedule. So now my official first day of Chemo is Monday May 11th. I hope they have all the rest of this stuff figured out before that.
* I also get to attend a Chemo Class before then. Nik is coming with me, but it is not until closer to my treatment. I think it will be good and bad. It will answer a lot of questions, but I am willing to bet it freaks me out at the same time.
* The type of chemo I am scheduled to have (and will if they stick to the Hodgkin's diagnosis) is called ABVD. It stands for the 4 drugs I will be given. I have them written down, but I can't remember them now. I was told last night that I should call my insurance and make sure the cover all of those drugs. And find out how they cover them as well. I guess some could be considered out-patient, and some in-patient. One more thing to add to the list.
Ok, I guess I am done again for a little while. I will add more as I think of it.
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I never even thought that insurance wouldn't cover any of your drugs! Let us know what you find out.
ReplyDeleteThe class reminds me of going to the birthing class. Let's put a bunch of first time pregnant women in a room, show them everything that could go wrong with graphic pictures and movies, then assure them that it is rare... That's a great tactic. It will probably be just what you said, informative, but a little scary. The thing to remember is they are not TRYING to scare you, it just is so easy to do! Having Nik there will be a big help to keep things in perspective.
ReplyDeleteThe ABVD drugs are:
ReplyDeleteAdriamycin
Bleomycin
Vinblastine
Dacarbazine
Wow, you have a lot on your plate for the next while. As always, let me know if you need anything. My first benevolent act will be to cancel Activity Days until at least 2 weeks after your first round of chemo ;) Okay, so I'd already done that, but I'll bet that is a load off your mind :) And if you aren't up to making it to our next activity, I totally understand. I still prefer you as my assistant to someone who wouldn't appreciate my sometimes dark sarcasm.
ReplyDeletesounds pretty overwhelming! thanks for keeping us updated. :)
ReplyDelete